$210.25
$700
Laura Tuberous Sclerosis Australia Incorporated
Laura
$210.25
$700
Tuberous Sclerosis Australia Incorporated
Laura
Laura

Laura's page has now expired

1113 days ago, Laura created this page in support of Tuberous Sclerosis Australia Incorporated.

With the help of TSC Heroes WA, Laura gave everything:

  • They posted 1 time.

  • Shared their page with everyone they could.

  • Received 5 donations from generous family and friends.

  • Raised $210.25.

My Story

My beautiful baby Shay was born so perfect! On day 3 of life we went to PMH for a check up on his heart murmur. Shortly after the scan we were told he would need open heart surgery within 24 hours.
After being admitted to the neonatal intensive care ward we waited what seems like forever to find out what was wrong. The doctors found Shay had multiple tumours on his heart and brain. He was diagnosed with tuberous sclerosis complex. A rare genetic condition that causes benign tumours to grow in vital organs. Shay has many appointments at PMH.
Physio therapy
Speech therapy
EEGs
Neurology
Cardiology
Dermatology
Gastroenterology
Occupational therapy

Shay also has epilepsy as part of his condition. Up until 8 weeks ago we battled multiple seizures of different types everyday. In January after a prolonged seizure shay lost his ability to speak. He was diagnosed with a global developmental delay. Now on a concoction of medication they are finally controlled and we can focus on hitting his milestones! Just the other day Shay clapped his hands!!

We are very proud of Shay and every thing he does. Please support us in our journey by supporting TS Australia and raising awareness.

Thank you

Team

TSC Heroes WA

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We've created this team because we want to raise money and make a difference by participating in HBF Run for a Reason 2016. Please help us by giving whatever you can using the 'Give Now' button. The more people that know about HBF Run for a Reason 2016, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!

Visit Team
Team

TSC Heroes WA

Blob

We've created this team because we want to raise money and make a difference by participating in HBF Run for a Reason 2016. Please help us by giving whatever you can using the 'Give Now' button. The more people that know about HBF Run for a Reason 2016, the greater the impact, so please also spread the word by sharing our page with your friends and family. Thank you in advance for your generosity, it means a lot!

Visit Team

Thank You

Top Supporters

HBF Run for a Reason 2016

22 May 2016 Visit this campaign

Donations Summary

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Charity

Tuberous Sclerosis Australia Incorporated